Turkey- tragic family condition

[Saoirse]

Heart breaking



https://uk.news.yahoo.com/turkey-family-reduced-walking-fours-rare-disorder-163255749.html

 

[Carolyn]

I saw a documentary about this family when we lived in the UK.

There was some suggestion that it was in some way due to their upbringing and not being taught developmental skills as I recall.

 

[Saoirse]

But how would upbringing make you walk/ act like this. Terrible and tragic

 

[Carolyn]

I did think that at the time.

With support and medical care/physiotherapy do you think it might have been different?

What is sad is the quiet acceptance of what was happening to their children.

 

[tosmur]

It is very sad, according to the clip they cannot stand upright, due to some medical condition. I imagine they were not accepted which led to poor education, the video mentions that the women rarely go into the village as they are not socially accepted. "They are occasionally beaten up by the village children and [are not] socially accepted," said Arabella. It is very sad and tragic as you say Phillip. The only way we learn to interact is through communicating and socialising with each other if people are denied this communication they will also be denied the language and socials skills needed to interact and socialise. It is cruel the way these people have been left in this situation without any help.

 

[Saoirse]

Almost makes you think of lepers etc - ostracised because of groundless fear and prejudice

 

[Akasya]

The Independent article mentioned lower back and hip / pelvis misalignment.

Steve.

 

[tosmur]

Many people are ostracised because of groundless fear and prejudice all over the world it is very sad, you would like to think in this day and age people would have made progress and have passed all this but sadly it still goes on.

I used to work with disabled people in an organisation that was used as a voice for other people with disabilities and it astounded me how many would ask the person pushing a wheelchair how the person in the wheelchair is, why didn't they just ask the person in the wheelchair "How are you?" Some people treat people with a disability as if they cannot do anything for themselves, not even speak, but believe me many are very clever and do so much for themselves.